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This page was last updated on: September 2, 2002

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National Convention Held in Portland in 1993 - Oregonian Article
Information about Marfan's is slowly getting out in the traditional media, as well as over the internet. The Oregon Chapter is taking steps to help educate the public through the traditional media as often as opprotunities permit. Below is a listing of past and expected media appearances.
Oregon Marf's In the News
Jennie's Article on Channel 12 (UPN) News - 1998
Upcoming appearance on Channel 2 (ABC) Portland - Pending ???
If you are a member of the Media and would like to arrange an appearance or do an article on Marfan's
please contact Shelly Moore at (503) 531-9068 or on my mobile access of (503) 805-7854.
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For Media Representatives:
This page has been visited
times since 8-6-2000.
Laurie & Alyssa Moyer's appearance on Local NBC affiliate KGW's News Channel 8 after the Marfan segment aired on "ER" - Oct 2001