Welcome to our web site.  It looks like 2006 will be a year of change. National was already discussing taking on hosting the chapter web sites, but due to lack of interest, it looks like we will be going down all together. Read on....
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Sunday - Feb 19, 2006

After trying unsuccessful to get feedback from our 300 members as to what should happen to the Oregon Chapter, National has made the decision for us and put us into inactive status.  I was not warned this was coming and was quite shocked when I got the call, and my first instinct was to call & protest, but after a bit of reflection, I did not.

It's not that I don't want the chapter to continue, I do, but Daniel & I had already discussed that current personal demands didn't leave enough time for me to devote to being president unless I got alot more support. Laurie is in even tougher shape that I.

After I really reflected on the situation, I had to decide if I was really doing the best thing by trying to revive an almost dead chapter? I don't believe so.

I will leave some links up for a while & will archive the chapter pages. If you need information from them please feel free to email me. I will be requesting to stay on as a telephone contact, and Daniel & I will be posting a personal Marfan's site to go with the Stickler's site I already have up. We have some things we've been wanting to post on our own, and now is our chance.

So in conclusion, I guess the time has come to let go. I hope someone else will come forward to help restart the chapter, but in case not, Daniel & I still want everyone to know how much we appreciate the time we had helping those with Marfan's. We wish you all the best!

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All 2005 entries have been moved to 2005 Archives.

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Oregon Chapter
NationalMarfanFoundation

. . .

This page was last updated on: April 15, 2006

This page has been visited
since February 25, 2000
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Welcome to our web site.  It looks like 2006 will be a year of change. National was already discussing taking on hosting the chapter web sites, but due to lack of interest, it looks like we will be going down all together. Read on....
***************************************************************************
Sunday - Feb 19, 2006

After trying unsuccessful to get feedback from our 300 members as to what should happen to the Oregon Chapter, National has made the decision for us and put us into inactive status.  I was not warned this was coming and was quite shocked when I got the call, and my first instinct was to call & protest, but after a bit of reflection, I did not.

It's not that I don't want the chapter to continue, I do, but Daniel & I had already discussed that current personal demands didn't leave enough time for me to devote to being president unless I got alot more support. Laurie is in even tougher shape that I.

After I really reflected on the situation, I had to decide if I was really doing the best thing by trying to revive an almost dead chapter? I don't believe so.

I will leave some links up for a while & will archive the chapter pages. If you need information from them please feel free to email me. I will be requesting to stay on as a telephone contact, and Daniel & I will be posting a personal Marfan's site to go with the Stickler's site I already have up. We have some things we've been wanting to post on our own, and now is our chance.

So in conclusion, I guess the time has come to let go. I hope someone else will come forward to help restart the chapter, but in case not, Daniel & I still want everyone to know how much we appreciate the time we had helping those with Marfan's. We wish you all the best!

***************************************************************************

All 2005 entries have been moved to 2005 Archives.

***************************************************************************


Oregon Chapter NationalMarfanFoundation

Main e-mail: nmf.oregon@gmail.com